Dare I Admit: My Child With Down Syndrome Is Happy!

Wil and me

Ok, here goes, I have an admission:

Wil has Down syndrome and he is very happy, social and loves to hug! Oh, and since I’m putting it all out there, I may as well tell you that we also have a great relationship with our school.

How dare I say such stereotypical things? Um, is because they are true for us a good enough reason?

Kind of crazy, isn’t it, that those kind of admissions win us advocates criticism? And guess who we get the most criticism from…other advocates.

How dare they say the school is great! We have to go to battle every single day! How dare they say their child behaves that way, they are perpetuating the stereotype! How dare they endorse that politician, he did nothing for us and our cause!

Hmmm, aren’t we the ones asking you to accept our child, despite their differences? Yet, here we are, not even able to accept our own differences.

Hey, newsflash, if each of our children are individuals, our experiences are going to be, too.

Believe me, I know that we are very fortunate with Wil’s schooling. He is a motivated kid, and we enjoy a good working relationship with his teachers and therapists. It’s not everyone’s story, but its ours, so when I write, my stories are going to reflect that.

I also have dear friends in our Ds support group that do not have the same school experience that we do. They have to battle with their schools to get services that are their children’s legal right, and its a daily stressful battle.

Our stories are different, and as friends, we share them to learn from one another and support one another. As advocates, shouldn’t we do the same? All of our stories are different, and can be very valuable when shared. They show the reader just how individual each of our kids and experiences are.

So, here’s an idea, share your story, get it out there! Just leave out the criticism of another’s story.

Isn’t that what advocacy is, after all? Accepting our individual differences?

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3 Comments (+add yours?)

  1. earthchanges2013
    Oct 06, 2013 @ 15:42:40

    I like your story:-) Thank you for sharing

    Reply

  2. painspeaks
    Oct 09, 2013 @ 16:15:55

    Reply

  3. Cheryl @ Stop The Stigma
    Oct 12, 2013 @ 16:36:18

    I love this story! So true that we tend to forget to point out great things some professionals, schools and teachers are doing. Some DO get it and it’s lovely that you can share this. Your school is a great model for those who do not quite get it yet or are looking to get it right. Advocates can use your positive experience as hope …Blessings

    Reply

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