Dear God…

Dear God,
Thank you for being you, for letting me know in so many ways that you are there.
There was a long time I was not sure of you, I didn’t really even know what to believe. But, one day, the world came crashing down on me, and I truly believed life was left to fate. That is the scariest feeling ever…http://christieleightaylor.com/dear-god/

christie 3

Advertisements

Do I Only Love Those That Love What I Love?

I’ve noticed a very interesting dichotomy in the fight for acceptance.

For instance, on Down syndrome support pages, the majority of parents are doing their best to advocate for acceptance of our children. We rally against bullying or any derogative comments and behavior. We proclaim, “Love and acceptance for all!”

Yet, the minute someone makes a derogative comment about our children, many of these same people who just claimed “Love and acceptance for all!” are firing back with derogative comments of their own! I understand the anger, believe me, but firing back with it does little for gaining new acceptance for our cause…http://christieleightaylor.com/do-i-only-love-those-that-love-what-i-love/

kissy face

Success is a Personal Business

The Monday after Easter, in the year of 2005, I started having what I thought were Braxton Hicks contractions. I was 6 months pregnant, and on my way to work, but I decided to make a quick detour to the hospital, just to be sure everything was ok…http://christieleightaylor.com/your/

IMG_2127

Growth is a Bond

Have you ever noticed, when we are gossiping, judging, condemning, that we ourselves, are not growing?
I met with a woman, and she grew up in very less than ideal circumstances. She had been cutting herself and doing drugs, all to escape her anxiety…http://christieleightaylor.com/growth/

IMG_2272

A Winning Spirit

Last Friday, I took Wil to his swim lesson, and another mom from our Down syndrome support group was there with her son. We started chatting it up as our boys swam, and she was telling me how her son also plays soccer. She explained how it is a “typical” soccer team, and the other parents and kids on the team, and on the competitors teams, are very supportive and encouraging of her son, even though he is quite a bit slower.
Then, during a particular game, there was this one parent who cheered on his child to cut past my friend’s son, and score a goal, which he did….http://christieleightaylor.com/a-winning-spirit/

IMG_7463

World Down Syndrome Day or World Celebration Day?

Every day, we have our ways of celebrating our kids, our friends, our extended family members. We laugh with them at those funny, little things that they do, or we give them a hug just for being them, or we pull our hair out in frustration over certain idiosyncrasies, but deep inside, we love them for being them.
Today, March 21, is World Down Syndrome Day (signifying the 3rd copy of the 21chromosome, cool date idea, huh?), but in a way I wish it was Let’s Celebrate the World Day! Because, really, what it comes right down to, is celebrating people with Ds just like we do others every single day……read on at: http://christieleightaylor.com/world-down-syndrome-day-or-world-celebration-day/
Wil 8th bday

The Stare

Crystal Mountain pool

We were up skiing at Crystal Mountain, and Wil decided he wanted to go for a swim, so we went down to the pool leaving his dad and his sisters out on the slopes.

In the pool another couple was playing with their four children. The wife and her daughter went to the hot tub, while the dad stayed in the pool playing with his boys. There was an older woman swimming laps, doing the kind of “head up out of the water frog kick” thing. She kept trying to discreetly look over, and the look was always at Wil, not at the dad with his boys. I could read that look on her face, I’ve seen it many times over these last 8 years.

Does he? Does that boy have Down syndrome?

When Wil was a baby, I wavered over and over, when in public, do I tell people? They’d stare just a little bit longer at Wil, and some people would come right out and say it. “Oh, he has Down syndrome doesn’t he?”

On Down syndrome support pages I read the question all the time from new parents, “When we are at the grocery store, and people say something about our baby, do we tell them he has Down syndrome?”

The answer is so simple to me now, but back then, I asked that same question. My answer now is, take it one experience at a time.

If I told myself that answer 8 years ago, I would have freaked out! No, I can’t do that, I need answers!

When our kids are babies, we have so many uncertainties, so many unanswered questions, but being in that place is exactly where we are forced to grow.

Through trial and error, and lots of bumps and bruises, we learn how to trust our intuition. We learn that bumps and bruises aren’t a bad thing, they just teach us to change direction, and try a different tactic. We learn who we are, and how to trust ourselves.

So, now, when I see those people who stare, I don’t immediately jump to conclusions, or take an automated response. I evaluate the moment. That evaluation is based on past experiences, and what I cannot define better than a vibe or feeling I get.

Because, you know, I could have really missed out if I listened to only what others said and ignored my inner feelings. When people stare, I just feel a certain vibe. With the lady at the pool, I felt a vibe where she just wanted to satisfy her curiosity, so she never met my eyes, or glanced my way, so we went on with our business, she with hers, like many strangers occupying the same space. Yet, there have been many occasions in public places where I’ve seen the stare, and I just feel some connection in it, so I look up and smile, and my smile seems to unleash the friendliness in these people, and we make a great connection. Just strangers, who have never met, and I find out that a niece, a nephew, an aunt, or even their child has Down syndrome. One woman told me her son is a young adult now, but Wil looks just like he did, blond hair, and how it is not an easy life, oh, but how very wonderful it is. Just you wait!

I would have missed many of those connections if I had some automated response, or already had my mind set on what staring means.

Sometimes, I think, we don’t have to explain anything, or have it all figured out to an exact science. Sometimes, simply exhibiting a little friendliness can tell us exactly what we need to know.

*You can also view on my website at: http://christieleightaylor.com/the-stare/

Previous Older Entries Next Newer Entries

%d bloggers like this: